For far too long, epilepsy in Pakistan has remained hidden in the shadows - misunderstood, stigmatised, and often ignored....
awareness
For far too long, epilepsy in Pakistan has remained hidden in the shadows - misunderstood, stigmatised, and often ignored. But a landmark initiative is changing that narrative. In a historic move, February 28 has now been declared National Epilepsy Day, with the entire month of February dedicated to epilepsy awareness.
Recently, the National Epilepsy Centre, JPMC, in collaboration with Epilepsy Association of Pakistan, Pakistan Chapter of the International League Against Epilepsy (ILAE), and Epilepsy Support Pakistan, held a press conference at Port Grand, Karachi, to announce the decision. The event was graced by Mayor Murtaza Wahab Siddiqui as Chief Guest and celebrated actor Nadia Jamil, who lives with epilepsy, as Guest of Honour.
The initiative is a tribute to one of Pakistan’s greatest humanitarians, Abdul Sattar Edhi Sahib, who also lived with epilepsy. Dr Zarine Mogal and Ms Shanaz Ramzi, senior office bearers of the associations, explained why February 28 - Edhi Sahib’s birth anniversary - was the ideal date. “Recognising this day is a conscious initiative aimed at celebrating people with epilepsy. With resilience, determination, and societal support, they can achieve great heights,” Dr Mogal emphasised.
Pakistan has taken significant strides in epilepsy awareness since 2001, but stigma remains a major barrier. Deep-rooted myths and lack of awareness continue to marginalise those affected. One percent of Pakistan’s population - 2.2 million people - live with epilepsy, yet many suffer in silence.
Nadia Jamil, a beacon of strength in the entertainment industry, shared her personal journey. Her success proves that epilepsy does not define a person’s potential. “Many high achievers in our society have epilepsy but stay silent due to stigma. It’s time to break that silence,” she said.
The movement is gaining momentum beyond Pakistan. Prof. Helen Cross, Dr Francesca Sophia, and Prof. John Dunne, global epilepsy leaders, sent congratulatory messages, recognising Pakistan’s two decades of efforts to combat stigma.
The ultimate goal? A nationwide shift in perception. Dr Mogal stressed the importance of inclusivity and health equity, urging people from all walks of life to support this cause. The Health Ministry of Pakistan has been approached for formal endorsement.
With National Epilepsy Day and Awareness Month now in place, the message is clear: It’s time to talk about epilepsy, dispel myths, and create a future where no one suffers in silence.
- You! desk
